Learning Patience

 Being a mom takes so much patience. It seems like theres always going to be something we are waiting on that we need or want for Luke. There are always phone calls to doctor offices and insurance that I need to make. It wears me down sometimes. Its kind of a battle to get what we need for Luke. We got an offer on our house this week. After two days of waiting to hear back from the buyer with our counter offer the person backed out. Not because of the offer, but because they want to rent somewhere instead of buy a house. So disappointing, but we know God has a plan. I hadn't really let myself get excited about moving until that offer because who knows how long it will take to sell. So back to being patient. God has it figured out for us, but we have to wait.  So we made a pie to cheer us up a little.

Livi making the filling for coconut cream pie. Shes been so excited to help me cook lately.

Luke trying out some pesto pizza

Luke's physical therapist brought a switch toy for him to try out. He isn't strong enough to push buttons on most toys, but the switches are easy for him to push. It was so fun to watch him react when he realized he was making the toy turn on!

Luke got to try out a power chair at physical therapy this week. Its going to take time for him to learn how it works, but once he gets the hang of it I know he will love it. We are trying to figure out which joystick will work best for him to operate the chair. Hopefully we will be able to borrow a chair soon to try out at home for a while. 

When we first suspected there was something wrong with Luke he was about 6 months old. The thought of my child in a wheelchair was the scariest thing. I just couldn't imagine that. I had to hope that he would get stronger and there would turn out to be nothing wrong. Its taken me time to deal with and process whats happening. I can't fix it. I know God can, but he hasn't yet. I have to trust His will to be done whatever that looks like. Seeing other SMA kids at the conference in their chairs was such a blessing to me. The kids helped me stop being scared. Now his powerchair is something to actually look forward to!