We had a great vacation at the Outer Banks of NC. Lukie's first time in the ocean and he loved it! Also we went to the SMA conference in D.C. Its was really special to see Luke driving his chair around with the other kids. I remember at the last conference two years ago feeling so scared and overwhelmed. It was still emotional this time, but we have come through so much and are so proud of our little guy.

Unfortunately Luke has another broken bone. He slid off the sofa while we were on our trip and the same leg that was fractured a few months back broke again. He had just healed up from his little humerus fracture on his left arm. It was pretty tough being away from home and dealing with it, but we made it. When we got home our doctor here had to set it better and cast it under sedation. Luke did great and is much more comfortable with the cast on it. Its a spica cast so it goes all the way down the broken leg and around the hips and half way down the other leg. So its challenging with diapers and positioning. We know we really need to look into some medication to make his bones harder. We will be meeting with another doctor to look into getting that treated before we go into the scoliosis surgery he will need. We were planning on doing the surgery in August but it will have to wait until we know his bones are strong enough to handle the surgery.

So how am I dealing with all of Luke's needs. Mostly I hold my feelings about all of this inside because it is what it is and I have to keep going and take care of my kids. Of course it kills me to see him in pain. Its really upsetting that his bones break so easily. I dread the scoliosis surgery. But its also become pretty normal to deal with it all. Our life with Luke is different and we just go with it. Doesn't mean its easy for us, but we have lots of help and God's promise to never leave us. Lately I feel God reminding me that I go through all of this with Him at my side and if I will keep that in mind then its much easier to have peace. I just forget to stay in His presence. It makes sense to worry and to fear the future. But I know I need to try and enjoy right now and believe that God can take care of whatever comes. Its a battle that goes back and forth in my mind. 

Glad we rented the beach wheelchair!

Livi had a blast, loved the waves and flying kites, and especially seeing cousins Silas and Maddie.

Vacation with kids isn't exactly relaxing, especially with what happened, but we made some great memories and loved the time with family. 

Prayer for Luke's leg to heal straight and quickly so we can get this cast off as soon as possible. And guidance on treatment for his bone density and when to do the scoliosis surgery. Strength for our backs as Luke is getting heavier to carry around. We are both feeling some back strain. Thankful for Luke's joyful spirit through all this. We are amazed at how happy and content he is most of the time in his cast playing with his cars and watching movies and reading books. Always thankful for prayer!